Caversham couple raises awareness for Muscular Dystrophy WA
PUBLISHED IN THE EASTERN REPORTER | 5TH SEPTEMBER 2018 | WRITTEN BY KRISTIE LIM
A Caversham couple is raising funds towards Muscular Dystrophy WA (MDWA), in a bid give their son and other kids diagnosed with the disease a chance to fulfil their dreams.
The not-for-profit organisation provides personal support, advice, services and advocacy to families.
Muscular dystrophy refers a group of disorders that involve a progressive loss of muscle mass and consequent loss of strength. Brita and Zy Phillips raised more than $7000 for the organisation, as part of the Dwellingup 100 Mountain Bike Race last month.
In March 2017, their youngest son Ari was diagnosed with a rare form of congenital muscular dystrophy at one year and 11 months old.
Mr Phillips previously rode the 40km ride in 2017 before having his wife join this year.
Ms Phillips said Ari’s genes did not splice correctly and the defective gene resulted in him having muscular dystrophy.
“He cannot sit up by himself, roll over in bed by himself, lift up his arms, stand and walk,” she said.
“He has issues eating most foods as he fatigues quite easily.”
Ms Phillips said MDWA helped people with inclusive activities, providing lifesaving cough assist machines, counselling to families and donating money to research to try and find treatments and a cure.
“My husband and I are extremely passionate about helping the community and raising as much money and awareness that we can through hosting of events and fundraising through social media, please help us to help West Australians living with this life-threatening disease,” she said.
“MDWA helped us the day we got our diagnosis and helped put us in contact with other community members.”