How you can help
Our community is full of amazing individuals who we work with to help make the most of their every day. It can be a tough gig sometimes but we are here for good.
To keep this momentum going we need your help to continue making a difference.
Being a rare condition, we do not have the groundswell of population connected to other illnesses so our awareness has limitations. We need people to shout out about us and our community as much as possible.
Also, we are not government funded so we rely on companies and people like you to help us out financially.
There are plenty of ways you can get involved and be a part of our Support for Life initiatives.
Whether you want to fundraise, buy a ticket to an event, make a donation or even volunteer your time; taking action and connecting with us can lead to big results for everyone.