Your Community

Get connected

Do you follow us on social media? You can connect with us on our social media pages and stay up to date with our latest news.

Are you a member of our community? You can join our closed group ‘Muscular Dystrophy WA Community’ and use it as a platform to ask questions and start conversations. Please feel free add other community members too. If you see something relevant to others, you can post it in the group or mention us so we can share it.

The Loop website

Driven by Muscular Dystrophy Foundation and thanks to an ILC grant we worked closely with other MD associations across Australia to put together a website that lets you practically prepare and manage your health and wellness and connect with others living with a neuromuscular condition.

It’s a real space between life’s learning curves where you can prepare and share every step and find your voice amongst others following a similar journey.

You can access information on your condition and understand your diagnosis; find practical information on managing your condition as it progresses; create a tailored condition guide by adding your own notes or removing sections that aren’t relevant to you; and you can store information so you can come back later and download a print-friendly document to take to specialists and share with your support network.

Click here to go to The Loop, your neuromuscular resource.

Other Australian MD organisations

If you’ve found yourself on our page but don’t currently live in WA, please click on your State’s organisation from the list below so you can get the right support and access to the services you need.